Video: "One in a Million" By Owen Cant

My wife's cousin made this last year.

Thank you for everything you’ve done to raise awareness for Alternating Hemiplegia of Childhood.

It’s hard to talk about life with AHC at times but my wife and I realised that unlike more common conditions there is no awareness without the parents sharing often painful stories. This is a little glimpse into how you keep going living with AHC.

Sometimes many of the things Anya goes through are things too painful to share and videos too horrific/traumatic to share. We are so grateful to Owen to do this film and to share Anya’s, and our story, with respect and care.

So excited it’s now a finalist in the International Rare Disease Day Film festival in Berlin on Rare Disease Day 28th of February 2021!

This is what Owen Cant had to say about the making of his video:

Thank you to everyone who put so much of their time and effort into making this.

As part of today's rare disease day 2021- I'd like to share a film I made with you, which I'm chuffed to say has just been selected as a finalist in the 2021 'international rare disease film festival- Berlin'.
You can watch the full film (12mins) here:

"It is called One in a million and is about my cousin Anya, who suffers from an ultra-rare condition called 'Alternating Hemiplegia of Childhood (AHC)'. It is a short documentary that explores the traumatic period of diagnosis and the subsequent ways in which a family must adapt to an unpredictable disease that as yet has no cure.

On a personal level, making this film put a lot in perspective and I am moved and inspired by how Anya, Katherine & Abhishek manage as a team in the face of this very tough disease, every single day.
Massive thanks to Matthew Sturdy for the brilliant edit and to Alex Taylor and Shona Brown at cosmic joke ltd for producing. Also thanks to Tum Borford for the soundtrack and Kitty Hopking for the titles.

I will also be running the 2021 Manchester Marathon in aid of the AHC Foundation, a charity raising money for research into a cure for the condition. Please give whatever you can spare by clicking the link below. Thanks to those who have donated already".

https://www.justgiving.com/fundraising/owencant

Owen with Anya

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